There is hope for every child
We help families of children with Cloverleaf Syndrome and other craniofacial conditions pay for the care their kids need, and we teach communities to meet every child with a hug, a handshake or a high five.
Three things we do, and have done since 2003
A small family foundation with no paid staff can still change what a bad month looks like for a family, and what a classroom looks like for a child who is different.
Financial assistance for families
When insurance falls short and the bills keep coming, we pay hospitals, therapists and schools directly so parents can focus on their child.
How assistance worksA children's book about kindness
Hugs, Handshakes & High Fives teaches kids in grades K to 3 how to include a classmate who looks or moves differently. We want a copy in every school library.
Meet Travis, the super-childHonest information for parents
Curated lists of hospitals, specialists, schools, support groups and research, with the good and the bad reported plainly, because that is what Alex's parents could not find in 2000.
Open the research hubThe foundation is named for a boy doctors said would not survive.
Alex Schon was born six weeks early in Orlando in May 2000 with Cloverleaf Syndrome, a rare craniosynostosis in which the skull's sutures fuse too soon. At the time only 139 cases had ever been reported. He had three major surgeries before his first birthday.
Alex graduated from high school in 2022. He volunteers, takes field trips with friends through Lift Disability's Elevate program, and has no surgeries planned. His family started the foundation in 2003 so other parents would have what they did not: somewhere to turn.
What a gift becomes
We are run entirely by volunteers, which is why we can promise that, apart from a very small amount for supplies and tax filing, your donation goes to the cause.
"With the medical bills piling up and having lost his job, he was just asking for a little help. Because of the foundation, we were able to catch up his daughter's medical bills and give the family room to get back on their feet."Dave Schon, President, on a father whose daughter has Pfeiffer Syndrome
Travis has a superpower. He brings people together.
Our children's book follows Travis, a super-child who changes how people see and treat each other using nothing more than hugs, handshakes and high fives. Written by Dave Schon and Casey Sage and illustrated by Marcela Ribero, it is read aloud in first-grade classrooms and given away in doctors' waiting rooms.
Every copy sold funds the foundation. Buy one for your family, or sponsor a stack for a school, church, hospital or library near you.
Ways to help this year
Placeholder. iStock #2156622966Play in the 19th Annual Golf Outing
Sunday, August 2, 2026 at Flushing Valley Golf Club. $400 a team, $100 a golfer, dinner for $35. Breakfast, lunch at the turn, raffle, 50/50 and awards.
Register your team
Placeholder. iStock #668214842Put your business on the course
Sponsorships from $150 to $1,000 pay for a year of help for a family and put your name in front of the Genesee County community.
See sponsorship levels
Placeholder. iStock #1407513683Give a little every month
Steady gifts let us say yes quickly when a parent writes to us. Change or cancel any time. $25 a month covers a year of therapy co-pays for one child.
Start a monthly gift
Two ways to take the next step
You are not alone in this.
If your child has Cloverleaf Syndrome or another craniofacial condition and the bills are piling up, tell us what is happening. We help where we can, and we will point you to people who can help with the rest.
Every dollar reaches a family.
Nobody at the foundation is paid. Apart from minimal supplies and tax filing, every gift goes to families, hospitals, schools and books that change how children treat each other.