Alex’s family is living this question right now. He is in his twenties, healthy and busy, and his parents are working through the emotional process of planning for a time when they may no longer be able to care for him. Most families of children with complex needs get there eventually, usually with less help than they deserve.
This guide is our attempt to change that.
What the guide covers
- Planning basics. How to get organized, what documents matter, and how to identify your next step.
- Special needs trusts. How to provide for your child without disqualifying them from the benefits they rely on.
- Benefits and resources. Understanding SSI, Medicaid waivers and related programs, and the common pitfalls.
- Long-term strategies. Housing, guardianship and supported decision-making, and building a circle of support.
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In the meantime
If you are planning a gift to the foundation as part of your own estate plan, see Leave a Legacy Gift. If you need to talk to someone now, contact us.